Staying Connected

Making Music About My Story with VEDS (Glitter)

Katie Wright — Fri, 02 Jan 2026 12:45:03 -0500

This episode is about my album Glitter, and the pieces of my story with VEDS (Vascular Ehlers-Danlos Syndrome) that went into it. This album was produced through my record label, Sillybug Studios, LLC.

Carry the Torch Music Video: https://youtu.be/8d2Z7Ozj-i8

Glitter Music Video: https://youtu.be/9GUohGLPg5s

You can listen to Glitter wherever you stream your music. I also have vinyls available through ElasticStage: https://elasticstage.com/katiewright

Other info:

Find more information, including support groups and webinars, about VEDS, Marfan, and Loeys-Dietz, at thevedsmovement.org, loeysdietz.org, and marfan.org. You can also find information and resources through the John Ritter Foundation, johnritterfoundation.org

Links to resources, events, and research opportunities:

VEDS Collaborative Research Study: Email vedscoll@ohsu.edu

Marfan Foundation/The VEDS Movement/Loeys-Dietz Syndrome Foundation Events:

https://marfan.org/calendar

Join a Walk for Victory:

https://marfan.org/walk/

Help and Resource Centerhttps://marfan.org/ask

https://loeysdietz.org/ask

https://thevedsmovement.org/ask

Listener Survey

https://www.surveymonkey.com/r/8W37WKN

Support

Merch! You can now buy merch that helps you raise awareness of VEDS, Marfan, and Loeys-Dietz while supporting Staying Connected at my Printify pop-up store: https://staying-connected.printify.me/products

You can make a one-time donation to Translucent One LLC at https://www.paypal.com/ncp/payment/7BAB4R3QAA4R8, or you can also support this podcast by subscribing to my Patreon at https://www.patreon.com/Translucentone.

Thank you to all my patrons for supporting the show, and extra thanks to my top-tier Connected Patrons:

Jon HoltomAdventuresinlove4AndieRyan RodarmerBenjamin WeismanFiona McIver

Disclaimer

The views, information or opinions in the blog, podcasts and vlogs are solely those of the individuals involved and do not represent the opinions of The Marfan Foundation. The Marfan Foundation is not responsible and does not verify for accuracy any of the information contained in them nor does the information constitute medical or other professional advice or services. This content is not produced by nor affiliated with The Marfan Foundation or The VEDS Movement.

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Reconnecting with Dr. Shaine Morris

Katie Wright — Fri, 26 Dec 2025 18:05:37 -0500

In this episode, we’re going to talk to Dr. Shaine Morris, a pediatric cardiologist at Texas Children’s Hospital in Houston, Texas who is well known in our community. Shaine was on the show in 2021, and in episode she joins us again to share updates in research and care for people with VEDS, Marfan syndrome, and Loeys-Dietz.

Links mentioned in the episode:

Join the CLARITY registry: clarityregistry.com

Join the Heartmath study: Email Shaine at shainem@bcm.edu or register using the CLARITY study website

Join the Marfan exercise study: Email okarysbanilla@bcm.edu or register using the CLARITY study website

Fund Shaine’s research: https://www.texaschildrens.org/research/areas-research/cardiovascular-genetics

The VEDS Movement Research Update Webinar 2024: https://youtube.com/watch?v=JjyD5-8o8ts

Links to resources, events, and research opportunities:

VEDS Collaborative Research Study: Email vedscoll@ohsu.edu

Marfan Foundation/The VEDS Movement/Loeys-Dietz Syndrome Foundation Events:

https://marfan.org/calendar

Join a Walk for Victory:

https://marfan.org/walk/

Help and Resource Centerhttps://marfan.org/ask

https://loeysdietz.org/ask

https://thevedsmovement.org/ask

Support

Thank you to all my patrons for supporting the show, and extra thanks to my top-tier Connected Patrons:

Jon HoltomAdventuresinlove4AndieRyan RodarmerBenjamin WeismanFiona McIver

Disclaimer

The views, information and opinions in the podcast are solely those of the individuals involved and the information presented does not constitute medical or other professional advice or services. Any opinions I express in this podcast are my own, and not of my employer.

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Robyn Beer

Katie Wright — Tue, 16 Dec 2025 16:02:04 -0500

In this episode, we talk with Robyn Beer, who was diagnosed with VEDS, or Vascular Ehlers-Danlos syndrome, last year. One of her sons was also diagnosed. In this episode, she shares how she got her diagnosis, and how she is moving forward with it.

Links to resources, events, and research opportunities:

VEDS Collaborative Research Study: Email vedscoll@ohsu.edu

Marfan Foundation/The VEDS Movement/Loeys-Dietz Syndrome Foundation Events:

https://marfan.org/calendar

Join a Walk for Victory:

https://marfan.org/walk/

Help and Resource Centerhttps://marfan.org/ask

https://loeysdietz.org/ask

https://thevedsmovement.org/ask

Support

Thank you to all my patrons for supporting the show, and extra thanks to my top-tier Connected Patrons:

Jon HoltomAdventuresinlove4AndieRyan RodarmerBenjamin WeismanFiona McIver

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Dr. Hal Dietz

Katie Wright — Tue, 02 Dec 2025 09:00:33 -0500

In this episode, I have the honor of talking with Dr. Hal Dietz about his research in VEDS, Marfan, and Loeys-Dietz syndromes. Hal is well known in our community for his research and dedication to improving lives for people with these conditions.

Links to resources, events, and research opportunities:

VEDS Collaborative Research Study: Email vedscoll@ohsu.edu

Marfan Foundation/The VEDS Movement/Loeys-Dietz Syndrome Foundation Events:

https://marfan.org/calendar

Join a Walk for Victory:

https://marfan.org/walk/

Help and Resource Centerhttps://marfan.org/ask

https://loeysdietz.org/ask

https://thevedsmovement.org/ask

Support

Thank you to all my patrons for supporting the show, and extra thanks to my top-tier Connected Patrons:

Jon HoltomAdventuresinlove4AndieRyan RodarmerBenjamin WeismanFiona McIver

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Paul Korotish

Katie Wright — Wed, 26 Nov 2025 13:51:46 -0500

Today we’re going to talk with Paul Korotish, who was just diagnosed with VEDS last year after an iliac artery rupture.

Information mentioned in the episode:

2017 International Classification of Ehlers-Danlos syndromes: https://onlinelibrary.wiley.com/doi/10.1002/ajmg.c.31552

Links to resources, events, and research opportunities:

VEDS Collaborative Research Study: Email vedscoll@ohsu.edu

Marfan Foundation/The VEDS Movement/Loeys-Dietz Syndrome Foundation Events:

https://marfan.org/calendar

Join a Walk for Victory:

https://marfan.org/walk/

Help and Resource Centerhttps://marfan.org/ask

https://loeysdietz.org/ask

https://thevedsmovement.org/ask

Support

Thank you to all my patrons for supporting the show, and extra thanks to my top-tier Connected Patrons:

Jon HoltomAdventuresinlove4AndieRyan RodarmerBenjamin WeismanFiona McIver

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Dr. David Murdock

Katie Wright — Tue, 18 Nov 2025 13:28:36 -0500

Today we’re going to talk with Dr. David Murdock, a clinical geneticist at the University of Texas Health Science Center who is doing research in connective tissue conditions, including VEDS, Marfan, and Loeys-Dietz.

Information and links mentioned in the interview:

Research program looking into new genes associated with aortic and vascular conditions: https://med.uth.edu/internalmedicine/medical-genetics/john-ritter-research-program/research/

Montalcino Aortic Consortium (MAC) Study: https://montalcinoaorticconsortium.org/

Links to resources, events, and research opportunities:

VEDS Collaborative Research Study: Email vedscoll@ohsu.edu

Marfan Foundation/The VEDS Movement/Loeys-Dietz Syndrome Foundation Events:

https://marfan.org/calendar

Join a Walk for Victory:

https://marfan.org/walk/

Help and Resource Centerhttps://marfan.org/ask

https://loeysdietz.org/ask

https://thevedsmovement.org/ask

Support

Thank you to all my patrons for supporting the show, and extra thanks to my top-tier Connected Patrons:

Jon HoltomAdventuresinlove4AndieRyan RodarmerBenjamin WeismanFiona McIver

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Mike Osuna and Jeanette Garcia-Osuna, sharing Lucas’s Story

Katie Wright — Tue, 11 Nov 2025 09:17:23 -0500

In this episode, we’re going to talk with Mike Osuna and Jeanette Garcia-Osuna about their son, Lucas’s, story with Loeys-Dietz syndrome, type 2. Lucas died at the age of 15 from an aortic dissection and Loeys-Dietz, which he was diagnosed with in autopsy.

Heads up, in this interview we will talk about what happened to Lucas that day. Please listen with care, take breaks, and seek support if you need to.

Information and links mentioned in the interview:

Join or Donate to Team Lucas #19 at the South Florida Walk for Victory: https://give.marfan.org/team/780397

Grief and Loss support group at The Marfan Foundation https://marfan.org/calendar/grief-and-loss/

Autopsy laws involved deaths of minors in the US: https://worldpopulationreview.com/state-rankings/autopsy-laws-by-state

Links to resources, events, and research opportunities:

VEDS Collaborative Research Study: Email vedscoll@ohsu.edu

Marfan Foundation/The VEDS Movement/Loeys-Dietz Syndrome Foundation Events:

https://marfan.org/calendar

Join a Walk for Victory:

https://marfan.org/walk/

Help and Resource Centerhttps://marfan.org/ask

https://loeysdietz.org/ask

https://thevedsmovement.org/ask

Support

Thank you to all my patrons for supporting the show, and extra thanks to my top-tier Connected Patrons:

Jon HoltomAdventuresinlove4AndieRyan RodarmerBenjamin WeismanFiona McIver

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Reconnecting with Grace Barnhart

Katie Wright — Tue, 04 Nov 2025 09:54:39 -0500

In this episode, we’re going to reconnect with Grace Barnhart, who was on the show a couple years ago sharing her personal story and caregiver story with Marfan syndrome. Grace is coming back on the show to talk about how her emotional experience with Marfan syndrome has changed over the last couple years, as well as her recent eye surgeries.

If you want to listen to Grace’s first interview on the show, you can listen to it here: https://staying-connected.blubrry.net/2023/11/22/grace-barnhart/

You can find Grace on Facebook at https://www.facebook.com/grace.barnhart.967

Links to resources, events, and research opportunities:

VEDS Collaborative Research Study: Email vedscoll@ohsu.edu

Marfan Foundation/The VEDS Movement/Loeys-Dietz Syndrome Foundation Events:

https://marfan.org/calendar

Join a Walk for Victory:

https://marfan.org/walk/

Help and Resource Centerhttps://marfan.org/ask

https://loeysdietz.org/ask

https://thevedsmovement.org/ask

Support

Thank you to all my patrons for supporting the show, and extra thanks to my top-tier Connected Patrons:

Jon HoltomAdventuresinlove4AndieRyan RodarmerBenjamin WeismanFiona McIver

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Amos Marsters

Katie Wright — Tue, 28 Oct 2025 14:56:05 -0400

Today we’ll be talking to Amos Marsters, who grew up with the knowledge of VEDS and a family history. Amos lost his father at 6 years old, and then his brother at 12 years old. He has also had a number of VEDS medical events.

Links to resources, events, and research opportunities:

VEDS Collaborative Research Study: Email vedscoll@ohsu.edu

Marfan Foundation/The VEDS Movement/Loeys-Dietz Syndrome Foundation Events:

https://marfan.org/calendar

Join a Walk for Victory:

https://marfan.org/walk/

Help and Resource Centerhttps://marfan.org/ask

https://loeysdietz.org/ask

https://thevedsmovement.org/ask

Support

Thank you to all my patrons for supporting the show, and extra thanks to my top-tier Connected Patrons:

Jon HoltomAdventuresinlove4AndieRyan RodarmerBenjamin WeismanFiona McIver

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Call for interviewees for the next season of Staying Connected!

Katie Wright — Tue, 29 Jul 2025 16:07:59 -0400

It’s been a minute, and I am excited to get back to the show. If you’re interested in sharing your story on the next season, please let me know by filling out this form. https://calendly.com/d/z7h-2cc-g33

Look forward to talking with you soon!

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Carlos Morales, sharing Kaitlyn’s story

Katie Wright — Fri, 03 Jan 2025 11:57:49 -0500

Today, we’re going to talk to Carlos Morales, who lost one of his children, Kaitlyn, to an aortic dissection in 2023 at the age of 14. This aortic dissection led to their diagnosis of Loeys-Dietz syndrome type 2, and also revealed that Carlos has Loeys-Dietz syndrome, mosaically.

Quick note: In this episode, Carlos will share in detail what happened to Kaitlyn. Please listen with care.

Links to resources, events, and research opportunities:

VEDS Collaborative Research Study: Email vedscoll@ohsu.edu

Marfan Foundation/The VEDS Movement/Loeys-Dietz Syndrome Foundation Events:

https://marfan.org/calendar

Join a Walk for Victory:

https://marfan.org/walk/

Help and Resource Centerhttps://marfan.org/ask

https://loeysdietz.org/ask

https://thevedsmovement.org/ask

Support

Thank you to all my patrons for supporting the show, and extra thanks to my top-tier Connected Patrons:

Jon HoltomAdventuresinlove4AndieRyan RodarmerBenjamin WeismanFiona McIver

Disclaimer

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Carmen David

Katie Wright — Fri, 27 Dec 2024 17:14:22 -0500

Today, we’re going to talk to Carmen David, who is going to share her experience with an aortic dissection after the delivery of her second daughter, her experiences recovering from that physically and emotionally, how she handled the information of two VUS’s, or Variants of Unknown Significance, and what she’s been doing since her dissection to raise funds for research.

Links mentioned in the episode:

* Runforaortichealth.com

* Johnritterfoundation.org

* Aortichope.org

* Aortic Dissection Collaborative https://www.pcori.org/research-results/2022/community-led-research-development-aortic-dissection-collaborative

*https://improvead.org/

*Aortic Athletes Facebook Group https://www.facebook.com/share/18CNWsphrL/

*AD in Pregnancy/PostPartum Facebook Group https://www.facebook.com/groups/1282484088538178/?ref=share&mibextid=NSMWBT

*contact for Carmen David, regarding the run event Runforaortichealth@gmail.com

Find more information, including support groups and webinars, about VEDS, Marfan, and Loeys-Dietz, at thevedsmovement.org, loeysdietz.org, and marfan.org. Also find more support for aortic dissection and ways to get involved through the John Ritter Foundation for Aortic Health, johnritterfoundation.org

Links to resources, events, and research opportunities:

VEDS Collaborative Research Study: Email vedscoll@ohsu.edu

Marfan Foundation/The VEDS Movement/Loeys-Dietz Syndrome Foundation Events:

https://marfan.org/calendar

Join a Walk for Victory:

https://marfan.org/walk

Help and Resource Center

https://marfan.org/ask

https://loeysdietz.org/ask

https://thevedsmovement.org/ask

Support

You can support this podcast by subscribing to my Patreon at https://www.patreon.com/Translucentone

Thank you to all my patrons for supporting the show, and extra thanks to my top-tier Connected Patrons:

Jon HoltomAdventuresinlove4AndieRyan RodarmerBenjamin WeismanFiona McIver

Disclaimer

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Reconnecting with Bella Marin aka in_VEDS_tigator

Katie Wright — Fri, 20 Dec 2024 08:00:00 -0500

Today, we’re going to talk to Bella Marin, who was previously on the show to talk about her story with VEDS, or Vascular Ehlers-Danlos syndrome. In today’s episode, she is returning to the show to talk about her recent experience with a bowel perforation and resulting complications.

Bella can be found at @in_VEDStigator on Facebook, and @in_VEDS_tigator on Tik Tok and Instagram

Links to resources, events, and research opportunities:

VEDS Collaborative Research Study: Email vedscoll@ohsu.edu

Marfan Foundation/The VEDS Movement/Loeys-Dietz Syndrome Foundation Events:

https://marfan.org/calendar

Join a Walk for Victory:

https://marfan.org/walk/

Help and Resource Centerhttps://marfan.org/ask

https://loeysdietz.org/ask

https://thevedsmovement.org/ask

Support

Thank you to all my patrons for supporting the show, and extra thanks to my top-tier Connected Patrons:

Jon HoltomAdventuresinlove4AndieAshton TannerRyan RodarmerBenjamin WeismanScottFiona McIver

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Marisa Hart

Katie Wright — Fri, 13 Dec 2024 09:03:51 -0500

In this episode, we talk to Marisa Hart, who was diagnosed with Marfan syndrome as a child. Marisa has an extensive family history and shares how Marfan has impacted her life, from sports, to seeing family members deal with Marfan, and her daily life and own surgery for pectus excavatum.

Content warning: Brief discussion of suicide.

If you would like to share your story with VEDS, Marfan, Loeys-Dietz, or a similar condition on this podcast, visit

https://calendly.com/d/z7h-2cc-g33

Links to resources, events, and research opportunities:

VEDS Collaborative Research Study: Email vedscoll@ohsu.edu

Marfan Foundation/The VEDS Movement/Loeys-Dietz Syndrome Foundation Events:

https://marfan.org/calendar

Join a Walk for Victory:

https://marfan.org/walk

Help and Resource Center

https://marfan.org/ask

https://loeysdietz.org/ask

https://thevedsmovement.org/ask

Support

You can support this podcast by subscribing to my Patreon at https://www.patreon.com/Translucentone

Thank you to all my patrons for supporting the show, and extra thanks to my top-tier Connected Patrons:

Jon HoltomAdventuresinlove4AndieAshton TannerRyan RodarmerBenjamin WeismanScottFiona McIver

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Tammy Asplund

Katie Wright — Fri, 06 Dec 2024 11:00:00 -0500

Today we’re going to talk to Tammy Asplund about her story with Loeys-Dietz syndrome, which she was diagnosed with at 52 after her son found out he had an aneurysm and also needed open heart surgery. Once he was diagnosed, it explained their family history and Tammy got tested and had open heart surgery as well.

Links to resources, events, and research opportunities:

VEDS Collaborative Research Study: Email vedscoll@ohsu.edu

Marfan Foundation/The VEDS Movement/Loeys-Dietz Syndrome Foundation Events:

https://marfan.org/calendar

Join a Walk for Victory:

https://marfan.org/walk/

Help and Resource Centerhttps://marfan.org/ask

https://loeysdietz.org/ask

https://thevedsmovement.org/ask

Support

Thank you to all my patrons for supporting the show, and extra thanks to my top-tier Connected Patrons:

Jon HoltomAdventuresinlove4AndieRyan RodarmerBenjamin WeismanFiona McIver

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Ryan Rodarmer

Katie Wright — Fri, 29 Nov 2024 18:16:51 -0500

Today we’re going to talk to Ryan Rodarmer, the director of The VEDS Movement, about his personal experience with aortic aneurysm and dissection, and his career as a genetic counselor working with connective tissue conditions and VEDS prior to his role at the Marfan Foundation.

Find more information, including support groups and webinars, about VEDS, Marfan, and Loeys-Dietz, at thevedsmovement.org, loeysdietz.org, and marfan.org.

If you would like to share your story with VEDS, Marfan, Loeys-Dietz, or a similar condition on this podcast, visit

https://calendly.com/d/z7h-2cc-g33

Links to resources, events, and research opportunities:

VEDS Collaborative Research Study: Email vedscoll@ohsu.edu

Marfan Foundation/The VEDS Movement/Loeys-Dietz Syndrome Foundation Events:

https://marfan.org/calendar

Join a Walk for Victory:

https://marfan.org/walk/

Help and Resource Centerhttps://marfan.org/ask

https://loeysdietz.org/ask

https://thevedsmovement.org/ask

Support

Thank you to all my patrons for supporting the show, and extra thanks to my top-tier Connected Patrons:

Jon HoltomAdventuresinlove4AndieAshton TannerRyan RodarmerBenjamin WeismanScottFiona McIver

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Claudia Arbelaez

Katie Wright — Fri, 22 Nov 2024 09:49:04 -0500

Claudia Arbelaez joins the show to share her story with Vascular Ehlers-Danlos syndrome (VEDS), which she was diagnosed with in 2020 after a kidney infarction and vascular rupture. A couple years after her diagnosis, she also had a colon rupture.

Find more information, including support groups and webinars, about VEDS, Marfan, and Loeys-Dietz, at thevedsmovement.org, loeysdietz.org, and marfan.org.

If you would like to share your story with VEDS, Marfan, Loeys-Dietz, or a similar condition on this podcast, visit

https://calendly.com/d/z7h-2cc-g33

Links to resources, events, and research opportunities:

VEDS Collaborative Research Study: Email vedscoll@ohsu.edu

Marfan Foundation/The VEDS Movement/Loeys-Dietz Syndrome Foundation Events:

https://marfan.org/calendar

Join a Walk for Victory:

https://marfan.org/walk/

Help and Resource Centerhttps://marfan.org/ask

https://loeysdietz.org/ask

https://thevedsmovement.org/ask

Support

Thank you to all my patrons for supporting the show, and extra thanks to my top-tier Connected Patrons:

Jon HoltomAdventuresinlove4AndieAshton TannerRyan RodarmerBenjamin WeismanScottFiona McIver

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Bridget Porter (Metz) sharing Connor’s story with Loeys-Dietz syndrome

Katie Wright — Fri, 15 Nov 2024 08:30:00 -0500

Bridget Porter (Metz) joins the show to share her son, Connor’s, story with Loeys-Dietz syndrome, which he was diagnosed with after he died of an aortic dissection at the age of 13. Connor was seen by a geneticist a few years before he died, but was told there was no need for a genetic test. Bridget and her family have been involved in efforts to raise awareness and funds for research since his death in 2020.

Find more information, including support groups and webinars, about VEDS, Marfan, and Loeys-Dietz, at thevedsmovement.org, loeysdietz.org, and marfan.org.

If you would like to share your story with VEDS, Marfan, Loeys-Dietz, or a similar condition on this podcast, visit

https://calendly.com/d/z7h-2cc-g33

Links to resources, events, and research opportunities:

VEDS Collaborative Research Study: Email vedscoll@ohsu.edu

Marfan Foundation/The VEDS Movement/Loeys-Dietz Syndrome Foundation Events:

https://marfan.org/calendar

Join a Walk for Victory:

https://marfan.org/walk/

Help and Resource Centerhttps://marfan.org/ask

https://loeysdietz.org/ask

https://thevedsmovement.org/ask

Support

You can also support this podcast by subscribing to my Patreon at https://www.patreon.com/Translucentone

Thank you to all my patrons for supporting the show, and extra thanks to my top-tier Connected Patrons:

Jon HoltomAdventuresinlove4AndieAshton TannerRyan RodarmerBenjamin WeismanScott

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Debbie Vaughan, sharing Josh Doss’s story with VEDS

Katie Wright — Fri, 06 Sep 2024 11:31:35 -0400

Today we will be hearing from Debbie Vaughan about her experience with Vascular Ehlers-Danlos syndrome (VEDS) and her late husband, Josh’s, story with VEDS. Josh passed away not long after their son was born. Near the end of the interview, we’ll also hear how she’s seen things change for people with VEDS in the last 27 years. In the episode, we mentioned Ehlers-Danlos Type 6, which was misquoted as periodontal EDS. However, this is now known as kyphoscoliotic EDS.

Find more information, including support groups and webinars, about VEDS, Marfan, and Loeys-Dietz, at thevedsmovement.org, loeysdietz.org, and marfan.org.

If you would like to share your story with VEDS, Marfan, Loeys-Dietz, or a similar condition on this podcast, visit

https://calendly.com/d/z7h-2cc-g33

Links to resources, events, and research opportunities:

VEDS Collaborative Research Study: Email vedscoll@ohsu.edu

Marfan Foundation/The VEDS Movement/Loeys-Dietz Syndrome Foundation Events:

https://marfan.org/calendar

Join a Walk for Victory:

https://marfan.org/walk/

Help and Resource Centerhttps://marfan.org/ask

https://loeysdietz.org/ask

https://thevedsmovement.org/ask

Support

You can also support this podcast by subscribing to my Patreon at https://www.patreon.com/Translucentone

Thank you to all my patrons for supporting the show, and extra thanks to my top-tier Connected Patrons:

Jon HoltomAdventuresinlove4AndieAshton TannerRyan RodarmerBenjamin Weisman

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Melanie Case

Katie Wright — Fri, 30 Aug 2024 10:22:14 -0400

Today we’re going to hear from Melanie Case, who was diagnosed with Marfan syndrome in 2002, a couple years after she had a thoracic aortic dissection following the delivery of her second child. This aortic dissection went undiagnosed for about two years, and after it was discovered, it led to her diagnosis with Marfan syndrome.

Links to resources, events, and research opportunities:

VEDS Collaborative Research Study: Email vedscoll@ohsu.edu

Marfan Foundation/The VEDS Movement/Loeys-Dietz Syndrome Foundation Events:

https://marfan.org/calendar

Join a Walk for Victory:

https://marfan.org/walk/

Help and Resource Centerhttps://marfan.org/ask

https://loeysdietz.org/ask

https://thevedsmovement.org/ask

Support

Thank you to all my patrons for supporting the show, and extra thanks to my top-tier Connected Patrons:

Jon HoltomAdventuresinlove4AndieAshton TannerRyan RodarmerBenjamin WeismanScottFiona McIver

Disclaimer

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